STXBP1 Global Connect
STXBP1 Global Connect is an affiliation of groups from around the world, all committed to improving the lives of patients afflicted with STXBP1 disorders. Our communities of parents, scientists, and medical professionals connect across the globe with the common purpose of ultimately finding a cure for this rare genetic disease. STXBP1 Global Connect is the central online site that lists and provides information on STXBP1 groups whether they are registered organizations or informal country-based groups. Supported by the STXBP1 Foundation, we are glad to welcome everyone who will join in alongside us in whatever manner they are able.
Together we are stronger. Together we will find a cure.
