STXBP1 World Map

Where in the World are STXBP1 Disorders Patients?

STXBP1 disorders is a rare genetic disease that effects patients worldwide. We’ve built this map as a visual representation of where our community is located across the globe. All listings are only displayed with your permission and they are anonymized for first name and approximate age as pulled from your entry in the Contact List. The listing will show an approximate age because we are collecting birth year only and not the patient’s birth month. This is sufficient for researchers for this purpose so don’t be alarmed if your map listing doesn’t reflect a patient’s actual age. It’s OK.

When you get on the map, literally, it allows us to know where you are located for research studies and Foundation activities.

To have your STXBP1 patient represented on our STXBP1 World Map simply register in our Contact List here.

The STXBP1 World Map is a key input to our quarterly STXBP1 Census!