STXBP1 Community Connect

Connect with Your STXBP1 Community

The STXBP1 Foundation is proud to introduce STXBP1 Community Connect

This new program provides opportunities for parents and caregivers to connect, educate, and amplify helpful information on STXBP1-related disorders together.

We recently launched in September during our STXBP1 Awareness Month with 4 brand new webinars and virtual sessions designed to bring us together to learn, share, and keep moving forward faster as a community.

Next we will rollout our latest resource intended to help with connections, support, and insights at the local and regional levels. Watch for updates from our STateXperts coming soon.

It’s only with your continued and active participation that our community will make a bigger difference in our drive to cure STXBP1-related disorders.

Past Community Connect Events

Here’s what our community has enjoyed already since we launched

October

  • Let’s Chat About AAC (Augmentative and Alternative Communication) devices
    (watch the recording here)

  • Virtual STXBP1 Family Meet & Greet

September

  • Kick Off Virtual STXBP1 Family Meet & Greet

  • Back to School with IEPs Info Session with Erin Prosser

  • Get Ready Clinical Trial Readiness Webinar
    (watch the recording here)

  • Cerebral/Cortical Visual Impairment (CVI) informational webinar with our partners at CVI Now
    (watch the recording here)