STXBP1 Community Connect
Connect with Your STXBP1 Community
The STXBP1 Foundation is proud to introduce STXBP1 Community Connect
This new program provides opportunities for connection, education, and advocacy. We recently launched in September during our STXBP1 Awareness Month with 4 brand new webinars and virtual sessions designed to bring us together to learn, share, and keep us moving forward faster as a community.
Next we will rollout our latest resource intended to help with connections, support, and insights at the local and regional levels. Watch for updates from our STateXperts coming soon.
It’s only with your continued and active participation that our community will make a bigger difference in our drive to cure STXBP1-related disorders.
Past Community Connect Events
Here’s what our community has enjoyed already
Virtual STXBP1 Family Meet & Greet
Back to School with IEPs Info Session with Erin Prosser
Get Ready Clinical Trial Readiness Webinar
(watch the recording here)Cerebral/Cortical Visual Impairment (CVI) informational webinar with our partners at CVI Now (watch the recording here)
