STXBP1 STARR Webcast on Thursday, 8/17
STXBP1 STARR Study: Information Session
The STARR Study is a natural history study for STXBP1, and launched in July 2023. The STARR study is being conducted at 4 sites in the US: Children's Hospital of Philadelphia, Children's Hospital Colorado, Baylor / Texas Children's Hospital and Weill-Cornell.
There has been a lot of interest in the STARR study and also a number of questions from families. Please join this information session on Thursday 17 August at 7:30 pm ET to learn more and ask questions.
The webinar speakers will include James Goss, PhD, our scientific director, and Jackie Steinberg, MPH, BSN, from our board who is leading our natural history study support team.
