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Million Dollar Bike Ride

Lulu’s Crew Team STXBP1 is riding again this year in the Million Dollar Bike Ride to raise money for research funding for STXBP1 through the Orphan Disease Center at University of Pennsylvania!

The MDBR will be a virtual event on June 12th -- so you can join from anywhere! On your road bike, mountain bike, Peloton, or even your tricycle! We are looking for riders, and supporters. Consider joining the team or cheer us on virtually!

In 2020, with $143K total money raised, STXBP1 had the largest grant funding of all the MDBR disease teams. For 2021, let’s try to beat that to fuel more research in STXBP1!

To register please complete the online registration: https://www.milliondollarbikeride.org/, then reach out to info@stxbp1disorders.org to set up your fundraising page, or for help to update your fundraising page from last year!

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March 16

Webinar: Physical Therapy for Children with STXBP1

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September 1

September is STXBP1 Disorders Awareness Month