Lulu’s Crew Team STXBP1 has already been accepted as a Disease Team by the Orphan Disease Center for the Million Dollar Bike Ride 2020.

The ride will take place on June 13th in Philadelphia, PA. We are looking for riders and supporters. Consider joining the team or be there to cheer us on if you can!
 
In 2019, with $139K total money raised, STXBP1 had the largest grant funding of all the MDBR disease teams. For 2020, let’s try to beat that to fuel more research in STXBP1!
 
To register: https://www.milliondollarbikeride.org/registration then forward your registration to info@stxbp1disorders.org and we’ll help you get your fundraising page set up.