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Rare Disease Day

The STXBP1 Foundation will be represented in person at this year's NIH Rare Disease Day on February 29th, 2024. This is a program set at the main campus of NIH dedicated to bringing awareness to rare diseases along with challenges and advancement within science and treatment. The event is open to the public and can be attended either in person or virtually.

Go here to learn more about the NIH Rare Disease Day program and to register.

Go here to learn more about Rare Disease Day.

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February 28

White House Rare Disease Forum

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June 7

NORD Living Rare Living Stronger