Back to All Events

Rare Disease Day


Show Your Stripes at Rare Disease Day on February 28 

The STXBP1 Foundation will participate in multiple ways for this year’s Rare Disease Day

  • In-person representation at this year's FDA-NIH Rare Disease Day 2025 which will be held at NIH Main Campus on Thursday, Feb. 27, 2025 and Friday Feb. 28, 2025, from 10 a.m. to 4 p.m. EST. The event will feature panel discussions, rare diseases stories, in-person exhibitors and scientific posters, and an art exhibition

  • Custom T-shirts are available for our community here

  • And a special fundraising challenge for STXBP1-related disorders with a $5,000 matching offer

Go here to learn more about Rare Disease Day.

Previous
Previous
December 6

AES Annual Conference

Next
Next
July 18

2025 STXBP1 Summit+