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Rare Disease Days at NIH

Rare Disease Day at NIH will be held virtually on Monday, March 1, 2021, from 10:30 a.m. to 5:30 p.m. EST. This year’s event will feature interactive panel discussions, rare stories through TED-style talks and more.

The event is free and open to the public, including patients, patient advocates, health care providers, researchers, industry representatives and government employees.

Registration is on the NIH site here.

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September 26

4th Annual STXBP1 5K Run

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March 16

Webinar: Physical Therapy for Children with STXBP1