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The STXBP1 community is partnering with RARE-X [a 501(c)(3) nonprofit] to build a Data Collection Program for our families. When you participate in the STXBP1 Disorders Data Collection Program, you’ll help accelerate research and the development of new drugs, devices, and other therapies.
Learn how sharing patient information will collectively make a difference in finding a cure for STXBP1 disorders and other rare diseases.
FIND OUT MORE IN OUR UPCOMING WEBINAR
Attend our webinar with RARE-X on Sunday 27 February at 2pm ET / 11am PT to learn what’s involved.