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Week in Rare


Global Genes is on the move — Week in RARE is moving to Kansas City, Missouri in 2024.

Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation.

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August 18

Mechanisms of Epilepsy and Neuronal Synchronization

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October 21

NORD Breakthrough Summit