Family Fundraising Partners

Our STXBP1 Disorder parents around the world have run their own unique fundraisers to contribute to the Foundation's mission and fund important research programs. These spotlights below are very creative ideas that will hopefully inspire us all to launch all kinds of new fundraising campaigns. Together, we will find a cure.

Clara inspired

See how Clara, Casey, and Kristen inspired others with their runs, music, and blog here.

The Million Dollar Bike Ride

Lulu's Crew rides in this annual fundraiser by the Orphan Disease Center @ UPenn

Camden’s Cure

A Go Fund Me campaign run by our Board member, Heather Jones and family.

Flourish

A multifaceted fundraiser including an art auction run from the UK.