EURORDIS Welcomes STXBP1 Disorders to its Association

The STXBP1 Foundation has been accepted as an associate member of EURORDIS.

EURORDIS strongly believes that bringing together all patient associations will provide people with rare diseases with a strong and unique voice. With nearly 1000 direct member organisations, EURORDIS is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases. Find out more here.

Participation in EURORDIS greatly expands our presence in Europe. You can see our other STXBP1 related entities including Spain, Italy, and Germany on our Partners in Advocacy page here.