Regional Groups

 

An effective online community is an effective offline community

STXBP1 Regional Groups

We want to bring STXBP1 families together to build a network of regional support. We have empowered local families to connect with each other, advocate, and build relationships with other STXBP1 families in their regions.  

Our current US regional groups: 

  • North Eastern (NY, NJ, MA, CT) 

  • Mid Atlantic (MD, DE, VA, Eastern PA)  

  • South East Region (TN, AL, GA)  

  • Florida

  • Ohio River Region (OH, WV, Western PA)   

  • Michigan

  • Texas  

  • California (to come)

If you'd like to join a regional group, email community@stxbp1disorders.org to get connected.

Program details:

Community Group Guidelines

  • Be Helpful

  • Show Kindness 

  • Be Respectful of others