A Message of Hope During COVID-19

Parent Perspective
Written By Russ Novy

Sending a message of HOPE from your STXBP1 Disorders community during the COVID-19 coronavirus pandemic. With the daily struggles of unknowns, fear, and unrest, we want you to remember how incredible you are, that you are loved and supported, and that there is always, always hope! Be sure to watch through to the end of this video for some special messages from our researchers.

Russ Novy
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Rare Disease Day 2020 Recap