0
Skip to Content
STXBP1 Foundation
What is STXBP1?
Patients & Families
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Global Connect
Clinics
Clinicians
The Scientific Director's Corner
Partners in Advocacy
Glossary
VIP Siblings Kits
Family Resources
Researchers
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News & Events
News
Blog
Newsletter
Podcasts
Million Dollar Bike Ride
2024 Summit+
Events
Past Conferences
Move To Cure
September Awareness Month
Patient-Focused Drug Development Meeting
Get Involved
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
About
About
Scientific Advisory Board
STXBP1 Film
Financials
Fast Forward Strategic Plan
Team
Careers
Contact
Search
Donate
STXBP1 Foundation
What is STXBP1?
Patients & Families
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Global Connect
Clinics
Clinicians
The Scientific Director's Corner
Partners in Advocacy
Glossary
VIP Siblings Kits
Family Resources
Researchers
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
News & Events
News
Blog
Newsletter
Podcasts
Million Dollar Bike Ride
2024 Summit+
Events
Past Conferences
Move To Cure
September Awareness Month
Patient-Focused Drug Development Meeting
Get Involved
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
About
About
Scientific Advisory Board
STXBP1 Film
Financials
Fast Forward Strategic Plan
Team
Careers
Contact
Search
Donate
What is STXBP1?
Folder: Patients & Families
Back
Genetic Testing
Newly Diagnosed
Register in our Contact List
Enroll in STARR Study
Clinical Trials and Research
World Map
Global Connect
Clinics
Clinicians
The Scientific Director's Corner
Partners in Advocacy
Glossary
VIP Siblings Kits
Family Resources
Folder: Researchers
Back
Researcher Resources
Basic and Preclinical Research
Clinical Trials and Observational Studies
Apply for a Grant
Million Dollar Bike Ride Grants for STXBP1
Research Funding Recipients
S-COMB Consortium
Publications & References
Folder: News & Events
Back
News
Blog
Newsletter
Podcasts
Million Dollar Bike Ride
2024 Summit+
Events
Past Conferences
Move To Cure
September Awareness Month
Patient-Focused Drug Development Meeting
Folder: Get Involved
Back
Fundraise
Ways to Give
Volunteer
Community Connect
The Grands Society
Advocacy
Collateral & Brand
Store
Folder: About
Back
About
Scientific Advisory Board
STXBP1 Film
Financials
Fast Forward Strategic Plan
Team
Careers
Contact
Search
Donate
Russ Novy 11/2/20 Russ Novy 11/2/20

Our Life with Epilepsy

Read More
A Message of Hope During COVID-19
Parent Perspective Russ Novy 6/22/20 Parent Perspective Russ Novy 6/22/20

A Message of Hope During COVID-19

Read More
STXBP1 Foundation 2019 Review
SIFM 2019 Russ Novy 2/18/20 SIFM 2019 Russ Novy 2/18/20

STXBP1 Foundation 2019 Review

Read More

ABOUT US

The STXBP1 Foundation is a parent-led 501(c)3 non-profit (EIN #82-1439459). We are dedicated to creating awareness and finding a cure for STXBP1 disorders.

EMAIL

info@stxbp1disorders.org

Info

About
Newly Diagnosed
Clinical Trials and Research
News
Events
Blog

Action

Join Parent Contact List
Contact
Donate

Sign up to receive news and updates.

Thank you!

Privacy Policy • Policy on Discrimination •
Community Participation Guidelines

© 2024 STXBP1 Foundation. All rights reserved.