Help Complete a New Study Available For Parents & Caregivers by April 15th
It’s easy to join the current STXBP1 ENGAGE study sponsored by Encoded Therapeutics.
Watch this short videos that describes the two part survey of parents and caregivers of individuals with STXBP1 disorders and its intent to help researchers better understand the healthcare journey and impact of this rare genetic disease.
Here are flyers with more details:
And, the survey links are below
All responses are due by April 15th, so please join in now to help us provide the total responses researchers need.
