Caregiver Connect Video Series

This video series is a great resource for caregivers. As members of the Rare Epilepsy Network, we are very lucky to collaborate and share with our peer organizations including the Dravet Syndrome Foundation (DSF).

Caregiver Connect is a video series with a focus on helping families manage the caregiver burden and stress that accompanies caring for a child or adult with a rare epilepsy and lifelong, complex medical needs. In collaboration with DSF, this series was developed by The Center for Pediatric Traumatic Stress at The Children’s Hospital of Philadelphia and Nemours Hospital for Children, Delaware.

Video modules are broken down into four important topics: Taking Care of the Caregiver; Caregiver Burnout; Communicating Emotions, Needs & Concerns; and Managing Grief. Each module offers multiple videos that you can watch on demand, as your schedule allows, as well as a coordinating tip sheet. If this resource would be useful to you or your community, you can find it at: https://dravetfoundation.org/caregiver-resources/caregiver-connect/.