STXBP1 Foundation NAMED “2023 TOP-RATED NONPROFIT” by GreatNonprofits

STXBP1 Foundation announced today it has been named a “2023 Top-Rated Nonprofit” by GreatNonprofits, the leading website for community recommendations of charities and nonprofits.

The STXBP1 Foundation is a parent-led advocacy organization. We are Leading the Charge for a Cure to epileptic encephalopathies and related neurodevelopmental disorders caused by changes in the STXBP1 gene. We are comprised of a diverse team of families and their supports, scientists and medical professionals dedicated to ending STXBP1 Disorders.

“We are honored to be named a 2023 Top-Rated Nonprofit,” says Charlene Son Rigby, President. “We are proud of our accomplishments this year, including our STXBP1 Annual Summit, FDA EL-PFDD meeting, and Move to Cure.”

The Top-Rated Nonprofit Award is based on the rating and number of reviews that the STXBP1 Foundation received from volunteers, donors and aid recipients. The STXBP1 Foundation is a great example of a nonprofit making a real difference in their community,” said Perla Ni, CEO of GreatNonprofits, “Their award is well-deserved recognition not only of their work, but the tremendous support they receive, as shown by the many outstanding reviews they have received from people who have direct experience working with STXBP1 Foundation.”

GreatNonprofits is the largest donation website for nonprofits and where people share stories about their personal experiences on more than 1.6 million charities and nonprofits. The GreatNonprofits Top-Rated Awards are the only awards for nonprofits determined by those who have direct experience with the charities – as donors, volunteers and recipients of aid. 

The complete list of 2023 Top Rated Nonprofits can be found at: https://greatnonprofits.org/awards/browse/Campaign:Year2023/Issue:All/Page:1