In The News: An Unstoppable Spirit

Lily Kahrl: An Unstoppable Spirit

Lily Kahrl is a senior varsity swimmer at Wellesley High School and her journey is an inspiring example for families familiar with the unique challenges of STXBP1 encephalopathy! Lily’s story is filled with the meaningful connections she's formed with her peers and all she has achieved as part of the varsity swim team. Swimming empowers her to pursue her interests and participate in the things she loves.

Team Lily

The bonds Lily shares with her teammates and peers are evident in the simple gestures like high-fives and camaraderie. The Wellesley High School girls swimming team has embraced her, creating friendships that extend beyond the pool. The "Team Lily" shirt that her coach, Coach Curtin, proudly wears symbolizes the team’s collective support and belief in Lily. These connections enrich her life with genuine friendships and shared experiences.

We Shall Overcome

Lily Kahrl's story is a symbol of the greatness all our STXers can achieve. Her passion, determination, and the unwavering support of her community are a powerful reminder that, despite the challenges, our loved ones can find success and happiness. As we celebrate Lily's journey, we celebrate the strength and resilience of all our loved ones with STXBP1. We take comfort in the fact that we are never alone and that together, we can overcome any obstacle.

Check out some more awesome pictures at Wicked Local’s website.

Lily's amazing accomplishments have also been covered by CBS News here.