Rare in Times Square

Written By Russ Novy

Look who’s at the center of the world. Say hi to Emma. Emma is living with an STXBP1-related disorder. Emma’s portrait, by Lawrence Gardinier, is one of dozens featured in Times Square this month leading up to Rare Disease Day on February 28th. Together, let’s make a child’s rare disease a little more visible.

See Emma’s portrait and visit Rare in Times Square to learn more.

#RareinTimesSquare brought to you by @BeyondtheDiagnosis

Russ Novy
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