Penn Rare Disease Scientist Studies Daughter's Epilepsy, Wins Grant

Wide exposure for STXBP1 Disorders with the cover article from the Philadelphia Inquirer featuring Ben Prosser & Erin Prosser…and of course Lucy.

Incredible work happening at Perelman School of Medicine at the University of Pennsylvania and Children's Hospital of Philadelphia thanks to a generous $25M gift from an anonymous donor. We are moving a cure for STXBP1 disorders FAST FORWARD.

Read the full article about the Prosser family and the new joint research center at Penn and Children’s Hospital of Philadelphia here.