An Introduction to Gene Therapy
Rare But Not Alone
See the Rare Diseases Day 2024 Run in Germany
Rare Diseases Day Run in Oberthal, Germany had nearly 50 runners hit the finish line
Scientific Director’s Corner: What is a Natural History Study?
We Were in the House … The White House
Hear Charlene Son Rigby’s comments on a panel discussing “Policy Challenges and Opportunities in the Rare Disease Community”
Scientific Director's Corner: Genes are the Blueprints for Making Proteins
Celebrating 2023 & Looking Forward
STXBP1 Community Shines at AES Meeting: A Recap
Two Parents Determination: Sagi and Ella’s Journey to Advance STXBP1 Research
STXBP1 Foundation Recognized as a 2023 Top-Rated Nonprofit by GreatNonprofits
Personal Stories for Epilepsy Awareness Month
The Voice of The STXBP1 Community: A Landmark FDA Meeting and A Rare Achievement
Insights from Families Living with STXBP1-Related Conditions
First STXBP1 Family Meeting in Germany!
New to STXBP1 Research: The Nonsense Mouse Model
Compelling Research Involving STXBP1 to Help Patients Get a Diagnosis More Quickly
Exciting News: The STXBP1 Foundation is Growing!
See How the STXBP1 Foundation Board Has Expanded
STXBP1 STARR Webcast on Thursday, 8/17
Join live this Thursday or catch the recording afterwards
Three Take Aways from STXBP1 Summit+ 2023
