
STXBP1: Fast Forward to a Brighter Future

How Are We Going to Treat STXBP1 Disorders?

A Message to Our Dads from Our Own Dr John Oldenhof

An Overview of Clinical Trials

Strides in STXBP1: What Happened Last Month in STXBP1 Research?

American Society for Cell and Gene Therapy (ASCGT) conference recap by Mike Boland with Charlene Son Rigby

Preclinical Studies in Drug Development

An Introduction to Gene Therapy

Rare But Not Alone

See the Rare Diseases Day 2024 Run in Germany
Rare Diseases Day Run in Oberthal, Germany had nearly 50 runners hit the finish line

Scientific Director’s Corner: What is a Natural History Study?

We Were in the House … The White House
Hear Charlene Son Rigby’s comments on a panel discussing “Policy Challenges and Opportunities in the Rare Disease Community”

Scientific Director's Corner: Genes are the Blueprints for Making Proteins

Celebrating 2023 & Looking Forward

STXBP1 Community Shines at AES Meeting: A Recap

Two Parents Determination: Sagi and Ella’s Journey to Advance STXBP1 Research

STXBP1 Foundation Recognized as a 2023 Top-Rated Nonprofit by GreatNonprofits

Personal Stories for Epilepsy Awareness Month

The Voice of The STXBP1 Community: A Landmark FDA Meeting and A Rare Achievement
