
Uplifting Athletes and STXBP1 Foundation Fund $20,000 Grant to Dr. Noah Guiberson at Weill Cornell Medicine

STXBP1 Census - Q4 2023

Immedica granted orphan designation for glycerol phenylbutyrate in STXBP1-related disorders

STXBP1 Foundation NAMED “2023 TOP-RATED NONPROFIT” by GreatNonprofits

In The News: An Unstoppable Spirit
Feature article in the Wicked Local website from October 5, 2023

Sharing the Voice of The STXBP1 Community with the FDA!

STXBP1 Census - Q3 2023

In The News: How an STXBP1-related Disorder Diagnosis Changes a Dodgers Pitcher's Life
Mainstream media coverage of STXBP1 disorders during September Awareness Month

STXBP1 Foundation Announces STARR Study for Clinical Trial Readiness
Learn more about the STXBP1 study and US clinics

2023 STXBP1 Summit+ Science Highlights are Now Available in Conference Preview Video
See what science updates to watch for at this year’s conference.